As many of you know by reading this blog, I suffer from Hashimoto's disease. It took a team of doctors over two years to figure out what was happening, even though my Irish grandmother died from complications of Celiac disease. She also had a goiter.
Hashimoto's disease, also known as chronic lymphocytic thyroiditis, causes inflammation of the thyroid gland, which leads to hypothyroidism. It's an autoimmune disorder in which the immune system inappropriately attacks the thyroid gland, causing damage to thyroid cells and upsetting the balance of chemical reactions in the body.
Unfortunately, the signs and symptoms of hypothyroidism vary widely, depending on the severity of hormone deficiency, so it can lead doctors in another direction. At first, most barely notice symptoms, such as fatigue and sluggishness and attribute it to getting older. But as the disease progresses, many of us develop more obvious signs and symptoms. I believe I have been dealing with this condition my whole life and it finally took me down (literally), forcing doctors to look at all disease possibilities.
My symptoms were:
-Sensitivity to cold. (I always had these strange "cold attacks" where I'd get cold and nothing raised my temperature. It is a type of hypothermia, and hot showers left me shivering in the shower. One solution was to take a blanket and cover me over a blowing heater vent. I'd became exhausted, still shivering and fall asleep. I awoke feeling hung-over as if I ate too much sugar. It was the strangest event, which happened without warning. My doctor felt I was experiencing a mild form of Myxedema).
-Pale, dry skin. (No cream ever worked on alleviating this condition. It would go away when the sun came out and I went outside).
-A puffy face.
-Hoarse voice. (especially when exhausted).
-Unexplained weight gain, followed by weight loss, then gain again without changing lifestyle.
-Muscle aches, tenderness and stiffness, especially in shoulders and hips. (I always attributed this to ballet combined with ice skating; then aerobics combined with weight lifting and standing on my feet all day; then hiking too much on theweekends with this crazy boot camp work out class during the week. I never thought I wasn't suppose to be sore).
-Pain and stiffness in joints and swelling in knees or the small joints in hands and feet. (I thought this was from the 17 years I spent dancing on my toes and bending like a pretzel for ballet).
-Muscle weakness, especially in lower extremities. (I started noticing if I wasn't careful and turned wrong I'd have a nasty fall. The first few times it happened I thought nothing of it, but after a while it began to scare me. It was one of the symptoms which began to concern my doctor, as I was often black and blue from a recent fall.)
-Excessive or prolonged menstrual bleeding (menorrhagia). (I think this symptom speaks for itself...)
-Depression. (I caught on to this right away and was up in my doctors face. I was working out too much to be depressed, and refused anti-depressents. Luckily my doctor knew me for 18 years and was aware this was not me).
-Tingling and numbing of hands and feet. (My hands or feet would go to sleep for no apparent reason).
-Catching many colds. (I seemed to catch every cold and often it would turn into bronchitis).
-Sleep apnea. (Good lord the problems I had with sleeping!!)
-Memory problems. (Trouble remembering directions, confusion when driving, and not remembering details of information I once found easy).
-Hair loss. (Sort of a male pattern baldness thing with thinning hair - THANK GOODNESS this was reversed with the medication!)
-Extreme fatigue. (I could sleep for days and felt such lethargy, that at one point I wished to die. Luckily I live for Brian, called my doctor and had someone drive me to see him. He gave me a shot of B12 and changed my thyroid meds).
The thyroid gland produces two main hormones, thyroxine (T-4) and triiodothyronine (T-3). They maintain the rate at which the body uses fats and carbohydrates, control body temperature, influence heart rate and helpregulate the production of protein.
The rate at which T4 and T3 are released is controlled by the pituitary gland and the area at the base of the brain, which acts as a thermostat for our system. The brain signals the pituitary gland to make thyroid-stimulating hormone (TSH). The pituitary gland then releases an amount of TSH depending on how much T4 and T3 are in the blood. The thyroid gland regulates its production of these two hormones based on the amount of TSH it receives.
Normally, our immune system uses antibodies and lymphocytes to protect against viruses, bacteria and antigens that invade the body. As I stated at the beginning, Hashimoto's disease is an autoimmune disorder in which the immune system creates antibodies which damage the thyroid gland. The disease causes inflammation of the thyroid gland, known as "thyroiditis". This can impair the ability of the thyroid to produce hormones, leading to hypothyroidism.
Doctors don't know what causes an immune system toattack the thyroid gland. Some scientists think a virus or bacteria might trigger the response, while others believe a genetic flaw may be involved. My mother has thyroid nodules and elevated TSH.
Since my Hashimoto's disease caused a thyroid hormone deficiency, I needed replacement therapy with thyroid hormone. This involves a daily dose of Armour Thyroid and Cytomel, other people may be prescribed levothyroxine. This medication is suppose to restore hormone levels and reverse the symptoms listed above. It has taken me another two years after starting treatment to begin to feel better. They say it can take time to reverse symptoms, especially if the disease went untreated for a number of years.
Here are a list of websites for more information:
The Thyroid Foundation of Canada
At first the diagnosis and day to day dealing with the idea of a "disease" was difficult and frightening. Doctors don't say much when they deliver a diagnosis. As patients we are often left to search for our own answers ... and hope. Thank God for the Internet, books and medical studies.
There is also the worry of being able to handle one's life and how 'unsexy' the word "disease" can be. We think some foolish thoughts before we settle into the idea that we are stronger mentally than we ever knew. We fight back, manage the pills and get on with the day to day living of our lives.
I still have good days and bad days. There are the occasional "crashes", where for some reason the meds don't work and some difficult symptom reappears. I think this is the cycle of auto-immunity. When I catch a simple cold now (it is rare) the old feelings of exhaustion return and fear overtakes my thoughts. I have to remind myself it is "just a cold". In a few days I will be up and running again. I rest, then recover - thrilled that my body is doing what it is meant to - heal.
Some people overcome this disease, and for some strange reason the body stops attacking the thyroid and TSH returns to normal. For me, I am not sure about the outcome since I think I went too many years undiagnosed. But we know me - I love that word H O P E. It is the sweet wine of belief fruit that is my life.
"Sanity may be madness but the maddest of all is to see life as it is and not as it should be". ~Don Quixote
Until next time-
C